Hello there and happy World Haemophilia Day!Whether you're a bleeder or a clotter you may be interested to see this video which I made last week of me having one of my regular clotting factor injections. As a severe bleeder with type 3 von Willebrand I learned to self-infuse factor 8 aged 14 (26 years … Continue reading World Haemophilia Day 2014
Injections
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Night Mare
This was the evening after the morning before.Another weeny gummy bleed. Where this one came from I'm not sure - think it started around mid afternoon - aaaah mebbe it was that piece of Soreen I had with my cuppa?? It is very sticky and probly sucked a bit of my gum off. Nice. Anyway, … Continue reading Night Mare
Mucky Mush
This was the state of me when I woke up this morning.Gorgeous right??My tongue was more gory but it's rude to poke that out without a warning. This is the morning after a night on the towels. Actually it wasn't that bad. No towels required for drooling blood - just a cast iron stomach from … Continue reading Mucky Mush
My Psycho Moment…
Got out the shower yesterday to find this little bleeder:Not quite sure how that started - think it could've been Norman stabbing me in the shoulder with a pin, ee ee ee...I kept mopping and it kept not stopping:Managed to get me towel on as you can see - not that you'd have wanted to … Continue reading My Psycho Moment…
As Natasha Beddingfield once said…
March 2008 - I thought I had pulled a muscle but it got more and more painful and then the bruising started to come out. Took about 2 weeks to slowly run down my leg and into my foot before disappearing. Not had many muscle bleeds before.March 2008 - No idea how I got this … Continue reading As Natasha Beddingfield once said…
Blood Glorious Blood
Gum glorious gumbleeding on for ever.Three injections donewhy aren't you getting better?Xp.s. I know it's not the overdue continuation of my March maladies or anything about what's happened since, but when inspiration strikes (if you can call it that:) you just gotta go with it! Please feel free to continue song if you are similarly … Continue reading Blood Glorious Blood
Mad March – the beginning
I forgot how to do this.Or did I just tire of the sound of my own writing?Or am I just a lazy arse who cannot be bothered to type but who does keep checking her own blog, juuuust in case someone has kindly updated it for her...Probably a combo of the bottom two. I have … Continue reading Mad March – the beginning
On the first of December . . .
. . . my von Willies gave to mea bleedi-ing belly button.Hmmm.Yes, I know - that isn't right. I'll have a jab and if that doesn't knock it on it's little button head I'll get it checked out.Yes, I know - that is the Love Bugs nightie - sorry Louise 😦 but I'm sure it'll … Continue reading On the first of December . . .
