Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10
As a type 3 von Willebrand, life is like a box of chocolates. One which has been sabotaged by an ex lover and is filled with poisoned soft centres and pebble filled truffles which will break your teeth.Being a severe bleeder, activities which are undertaken without a second thought by a non bleeder, to me … Continue reading Bleed Hazards
I have had some good news today.Well, not exactly good news but I'm pleased nonetheless.I was referred for an M.R.I. on my ankle last time I saw my haemophilia specialist. This may sound extreme but other than a cursory play with my foot whenever I saw him, and sometimes not even that, I had begun … Continue reading I Am In Pain – so there!
Happy International ME/CFS and Fibromyalgia Awareness Day everyone!!Today, 12 May, is a day for raising awareness of ME / CFS and Fibromyalgia internationally. (Ok - so it's clearly not the 12th any more but that is when I started writing this piece.)In honour of this I would like to make the subject of my post … Continue reading For ME
Stepped out of the shower this morning and was drying myself when I had a familiar and slightly disturbing experience...Blood spatter.Not on the walls or the floor or, heaven forbid, the ceiling. On my towel. Which was fresh out of the linen cupboard.Ok - so I don't have a linen cupboard, it was just off … Continue reading Spot the Clot (or lack of it)
This was the evening after the morning before.Another weeny gummy bleed. Where this one came from I'm not sure - think it started around mid afternoon - aaaah mebbe it was that piece of Soreen I had with my cuppa?? It is very sticky and probly sucked a bit of my gum off. Nice. Anyway, … Continue reading Night Mare
I found out that I had contracted Hepatitis C from contaminated blood products inadvertently. I am a 33 year old woman and have Type III von Willebrands disorder (vWd). This is von Willebrands in its most severe form. I was diagnosed when I was 8 months old and since that moment I have needed at … Continue reading Contamination Narration
Got out the shower yesterday to find this little bleeder:Not quite sure how that started - think it could've been Norman stabbing me in the shoulder with a pin, ee ee ee...I kept mopping and it kept not stopping:Managed to get me towel on as you can see - not that you'd have wanted to … Continue reading My Psycho Moment…
March 2008 - I thought I had pulled a muscle but it got more and more painful and then the bruising started to come out. Took about 2 weeks to slowly run down my leg and into my foot before disappearing. Not had many muscle bleeds before.March 2008 - No idea how I got this … Continue reading As Natasha Beddingfield once said…
Hellooo and welcome to my first proper post of 2008 - 2008 can you believe it!! Where did 1974 - 2007 go to??Anyway, having bled horrifically for nigh on 2 years I've been on the hormone pill Norethisterone 3 times a day since November. Great, you might think - no more bleeding . . . … Continue reading I’m still bleeding . . . yeah, yeah, yeah!