So here we are. Writing for no real reason. I'm doing this during a Tap & Write session with Kate Marillat as part of her Taping Collective group on FB, which uses EFT to release resistance and blockages when you are trying to write. It's a great group video session that uses tapping to release … Continue reading Happy to be Ros
von Willebrands
My Journey Begins
Thanks for joining me! In the words of the fabulous, bearded lady from the Greatest Showman... I am brave, I am bruised, I am who I'm meant to be... This is me. The title of this post is misleading, because my journey began long ago, in a land far away. Well, it was the Isle … Continue reading My Journey Begins
World Haemophilia Day 2014
Hello there and happy World Haemophilia Day!Whether you're a bleeder or a clotter you may be interested to see this video which I made last week of me having one of my regular clotting factor injections. As a severe bleeder with type 3 von Willebrand I learned to self-infuse factor 8 aged 14 (26 years … Continue reading World Haemophilia Day 2014
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Funny Blood the book – how to get yours …
If you would like a copy of my mum's shiny new book Funny Blood - which is about adopting me as a baby, then finding out I had a severe bleeding disorder and the fun that ensued bringing me up - it costs £10.50 plus £2.50 postage (within the UK) if required. Multiple copies will … Continue reading Funny Blood the book – how to get yours …
Meeting with Anne Milton, Health Minister, October 24th
I recently attended a meeting with Anne Milton, Health Minister, on Monday October 24th at the Department of Health in London. My MP, Mark Garnier, managed to get me on the list of attendees. I was keen to attend to tell her personally how I felt about her announcement in January of this year which … Continue reading Meeting with Anne Milton, Health Minister, October 24th
Your Blood Supplement – Part 2
This is the second part of the information I sent to the Independent for their Your Blood supplement. It is being published tomorrow Friday 2 September - I'll put the link on here in due course. Your Blood - Part 2The next major challenge was, unsurprisingly, when my periods started. This was a moment my … Continue reading Your Blood Supplement – Part 2
Your Blood Supplement
Recently I was asked to write about having von Willebrand's disorder for a supplement called Your Blood which is soon to come out with an issue of The Independent. I was asked to write a paragraph but being me that was like trying to insert an elephant into a letter box.I am going to publish … Continue reading Your Blood Supplement
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
