So here we are. Writing for no real reason. I'm doing this during a Tap & Write session with Kate Marillat as part of her Taping Collective group on FB, which uses EFT to release resistance and blockages when you are trying to write. It's a great group video session that uses tapping to release … Continue reading Happy to be Ros
Chronic Fatigue
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Your Blood Supplement – Part 3
This is the third and final part of the piece I submitted to the Independent newspaper for their Your Blood Supplement. Only a tiny bit was included in the final piece and you can see it here:Your Blood SupplementYour Blood - Part 3I found out just before I went to university that I had contracted … Continue reading Your Blood Supplement – Part 3
I beg your pudding?
I used to be a good listenerOr at least I thought I wasYou, dear friends, Might tell me differentAnd I wouldn't mind :)I tried to be a good listenerAttentive, empathetic, sympatheticRemembering detailsRecalling them for future conversationsEnjoying sharing such a simple pleasureNow ...Now it's now so much funNot so rewarding Not so participatoryThe intention is still thereI … Continue reading I beg your pudding?
Get Well From ME
I discovered these videos the other day through a Facebook friend and fellow CFS sufferer. The maker and narrator of the videos, Giles Meehan, is a recovered ME patient. That makes him sound like an alcoholic - sorry Giles. The point is he has got better and he has developed a website and a number … Continue reading Get Well From ME
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
Ichabod is itchy …
... and so, the blinking heck, am I!! This time of night is a particularly pleasant time for me. Every night is the same; though it is worse if I am more tired. Basically I formicate. Every night. And it isn't fun. It's ... hang on a mo ... that is not what I said ... … Continue reading Ichabod is itchy …
May I Be Well…
My friend and I recently went to hear a man called Dr David R Hamilton speak.Dr Hamilton is an ex-scientist who now writes books and speaks in a motivational manner. That is not the way he would market himself I am sure, but that is my understated synopsis. If you would like to see how … Continue reading May I Be Well…
For ME
Happy International ME/CFS and Fibromyalgia Awareness Day everyone!!Today, 12 May, is a day for raising awareness of ME / CFS and Fibromyalgia internationally. (Ok - so it's clearly not the 12th any more but that is when I started writing this piece.)In honour of this I would like to make the subject of my post … Continue reading For ME
Don’t Disturb The Scab
... as my mother said to me, while I was hobbling down the kitchen towards the microwave with a tub of carrot and coriander.I have got various things to tell you, blogees. But I have not got the energy to write much more than this in one go.See that's it. I'm done in.Anyhoo - if … Continue reading Don’t Disturb The Scab
