I have had some good news today.Well, not exactly good news but I'm pleased nonetheless.I was referred for an M.R.I. on my ankle last time I saw my haemophilia specialist. This may sound extreme but other than a cursory play with my foot whenever I saw him, and sometimes not even that, I had begun … Continue reading I Am In Pain – so there!
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You were only waiting for an angel from above
The sun was out and so were we.The conversation meandered past my ears.Amidst the children's shouts arose another sound.Gradually we stopped and listened.As we silenced, he crescendo-ed.We sought him out and his voice drew the eye.Perched on the conifer top.Basking his bright beak in the sun.He sang from the depth of his tiny body.Performing his … Continue reading You were only waiting for an angel from above
May I Be Well…
My friend and I recently went to hear a man called Dr David R Hamilton speak.Dr Hamilton is an ex-scientist who now writes books and speaks in a motivational manner. That is not the way he would market himself I am sure, but that is my understated synopsis. If you would like to see how … Continue reading May I Be Well…
For ME
Happy International ME/CFS and Fibromyalgia Awareness Day everyone!!Today, 12 May, is a day for raising awareness of ME / CFS and Fibromyalgia internationally. (Ok - so it's clearly not the 12th any more but that is when I started writing this piece.)In honour of this I would like to make the subject of my post … Continue reading For ME
Spot the Clot (or lack of it)
Stepped out of the shower this morning and was drying myself when I had a familiar and slightly disturbing experience...Blood spatter.Not on the walls or the floor or, heaven forbid, the ceiling. On my towel. Which was fresh out of the linen cupboard.Ok - so I don't have a linen cupboard, it was just off … Continue reading Spot the Clot (or lack of it)
Night Mare
This was the evening after the morning before.Another weeny gummy bleed. Where this one came from I'm not sure - think it started around mid afternoon - aaaah mebbe it was that piece of Soreen I had with my cuppa?? It is very sticky and probly sucked a bit of my gum off. Nice. Anyway, … Continue reading Night Mare
Mucky Mush
This was the state of me when I woke up this morning.Gorgeous right??My tongue was more gory but it's rude to poke that out without a warning. This is the morning after a night on the towels. Actually it wasn't that bad. No towels required for drooling blood - just a cast iron stomach from … Continue reading Mucky Mush
NonSense
Sometimes I hear singing in the silenceSometimes I see colours in the darkSometimes I feel the warmth of a hug though I'm aloneSometimes I sit in sunlight,surrounded by people,and am deaf, blind and numb
Narration Explanation
The content of the post below this was my statement for the Lord Archer Independent Inquiry into Contaminated Blood.The recommendations from this inquiry have largely been ignored, however EDM 538 supports a Bill which aims to make them law and already has the support of 126 MP's.The Bill comes in front of the House of … Continue reading Narration Explanation
Contamination Narration
I found out that I had contracted Hepatitis C from contaminated blood products inadvertently. I am a 33 year old woman and have Type III von Willebrands disorder (vWd). This is von Willebrands in its most severe form. I was diagnosed when I was 8 months old and since that moment I have needed at … Continue reading Contamination Narration
Funny Bleeder 