Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10
Uncategorised
HCV and Me – An Affair To Forget
You came into my life insidiously.Like a demon you crawled under my skin,through my veins and into the heart of me.Unaware of the danger I plunged on,not understanding what it wasI was introducing to myself.You were therefrom the very beginning,intrinsically part of me.But I knew nothing.Ignorant of how you were taking over my body,destroying my … Continue reading HCV and Me – An Affair To Forget
Bleed Hazards
As a type 3 von Willebrand, life is like a box of chocolates. One which has been sabotaged by an ex lover and is filled with poisoned soft centres and pebble filled truffles which will break your teeth.Being a severe bleeder, activities which are undertaken without a second thought by a non bleeder, to me … Continue reading Bleed Hazards
Ichabod is itchy …
... and so, the blinking heck, am I!! This time of night is a particularly pleasant time for me. Every night is the same; though it is worse if I am more tired. Basically I formicate. Every night. And it isn't fun. It's ... hang on a mo ... that is not what I said ... … Continue reading Ichabod is itchy …
Foiblicious
If you know me, you'll be aware that I have a number of foibles, slight peculiarities, idiosyncrasies, anal tendencies, eccentricities. I believe they are worth celebrating.This is a list of those that spring to my mind:curtains - when they are drawn they need to hang straight - thinking about it, this applies when they are … Continue reading Foiblicious
CONTAMINATED
Cruel, blood bourne virusWhat did they do to deserve you?Which batches of life saving treatmentConcealed you, left you waitingTo cause your devastationFor years and years and years?Like characters on a stageThe infected ones play their partIn this real-life tragedy.Life, death, love, sufferingIs their plot; performance not rehearsedBut delivered with anger and passion.No producers here; the … Continue reading CONTAMINATED
Blood Sweat and Tyres 2010
'Blood, Sweat & Tyres’ was started in 2005 and is off-road mountain-biking dedicated to raising money and awareness for 'The Haemophilia Society'. Trails are selected to be physically demanding in order to be worthy of sponsorship, but with the objective of giving both an extremely enjoyable and rewarding experience for the riders.The Haemophilia Society was established … Continue reading Blood Sweat and Tyres 2010
Contaminated Blood Demonstration 30-06-2010
This week I attended the Contaminated Blood demonstration in London. This is my account of the event:Karen and I and wheely bags.Train from Kiddypork pie and sandwiches.Change at SmethickDisappearing trainWhat the... where d'it go?? Next one appearsWill we make connection?Two minutes to spare,cross platform onto London train.Phew.Oh no.Fatality on the line.Diversion via Staffordnorth to go … Continue reading Contaminated Blood Demonstration 30-06-2010
You know what they say…
...Cheer Up Lovexxx
Joking apart …
People tell me I have a positive outlook on life. During my life I've been told this a fair few times. I usually think nothing of it and thank them. Recently, however, I've begun to question myself. Do I??I decided long ago never to walk in anyone's shadow. Actually that was Whitney not me, it … Continue reading Joking apart …
Funny Bleeder 