Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10
Contaminated Blood
HCV and Me – An Affair To Forget
You came into my life insidiously.Like a demon you crawled under my skin,through my veins and into the heart of me.Unaware of the danger I plunged on,not understanding what it wasI was introducing to myself.You were therefrom the very beginning,intrinsically part of me.But I knew nothing.Ignorant of how you were taking over my body,destroying my … Continue reading HCV and Me – An Affair To Forget
Ichabod is itchy …
... and so, the blinking heck, am I!! This time of night is a particularly pleasant time for me. Every night is the same; though it is worse if I am more tired. Basically I formicate. Every night. And it isn't fun. It's ... hang on a mo ... that is not what I said ... … Continue reading Ichabod is itchy …
CONTAMINATED
Cruel, blood bourne virusWhat did they do to deserve you?Which batches of life saving treatmentConcealed you, left you waitingTo cause your devastationFor years and years and years?Like characters on a stageThe infected ones play their partIn this real-life tragedy.Life, death, love, sufferingIs their plot; performance not rehearsedBut delivered with anger and passion.No producers here; the … Continue reading CONTAMINATED
Contaminated Blood Demonstration 30-06-2010
This week I attended the Contaminated Blood demonstration in London. This is my account of the event:Karen and I and wheely bags.Train from Kiddypork pie and sandwiches.Change at SmethickDisappearing trainWhat the... where d'it go?? Next one appearsWill we make connection?Two minutes to spare,cross platform onto London train.Phew.Oh no.Fatality on the line.Diversion via Staffordnorth to go … Continue reading Contaminated Blood Demonstration 30-06-2010
For ME
Happy International ME/CFS and Fibromyalgia Awareness Day everyone!!Today, 12 May, is a day for raising awareness of ME / CFS and Fibromyalgia internationally. (Ok - so it's clearly not the 12th any more but that is when I started writing this piece.)In honour of this I would like to make the subject of my post … Continue reading For ME