You see, I am most familiar with death. I was killed the moment you put a price on my life. You decided the value of me was less than the value of the profits you were likely to make, the costs I was likely to cost, the prestige you were likely to garner from publishing … Continue reading Why dad’s death was not devastating. For me.
Contaminated Blood
Help Wanted – warning bad language
This morning I am not well. It's weird actually saying that, because it's my mental health that is shot, however, for some reason I feel like that is my fault, that I am somehow in control of my mental state and that I should just "pull myself together", woman up and be "ok". Well this … Continue reading Help Wanted – warning bad language
Factor 9 – pledge now to take this play to the Edinburgh Fringe
I am writing this post to ask for your help with the attempt to get an incredible piece of work shown at this year's Edinburgh Fringe Festival. A playwright called Hamish MacDonald has written a play called Factor 9 based on the contaminated blood tragedy whereby thousands of haemophiliacs and those with other bleeding disorders … Continue reading Factor 9 – pledge now to take this play to the Edinburgh Fringe
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Meeting with Anne Milton, Health Minister, October 24th
I recently attended a meeting with Anne Milton, Health Minister, on Monday October 24th at the Department of Health in London. My MP, Mark Garnier, managed to get me on the list of attendees. I was keen to attend to tell her personally how I felt about her announcement in January of this year which … Continue reading Meeting with Anne Milton, Health Minister, October 24th
Your Blood Supplement – Part 3
This is the third and final part of the piece I submitted to the Independent newspaper for their Your Blood Supplement. Only a tiny bit was included in the final piece and you can see it here:Your Blood SupplementYour Blood - Part 3I found out just before I went to university that I had contracted … Continue reading Your Blood Supplement – Part 3
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
Government Announce Results of their Contaminated Blood Review
I'm really upset. The government are doing the least amount they can for those who meet the stage 2 Skipton Fund criteria and widows who can prove that their partners met that criteria. This is a small minority of our community and an inadequate, difficult to fulfil criteria. It is so minimal I'm bloody crying. What … Continue reading Government Announce Results of their Contaminated Blood Review
Contaminated Blood House of Commons Debate – 14.10.10
Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10
Funny Bleeder 