This is the third and final part of the piece I submitted to the Independent newspaper for their Your Blood Supplement. Only a tiny bit was included in the final piece and you can see it here:Your Blood SupplementYour Blood - Part 3I found out just before I went to university that I had contracted … Continue reading Your Blood Supplement – Part 3
Your Blood Supplement – Part 2
This is the second part of the information I sent to the Independent for their Your Blood supplement. It is being published tomorrow Friday 2 September - I'll put the link on here in due course. Your Blood - Part 2The next major challenge was, unsurprisingly, when my periods started. This was a moment my … Continue reading Your Blood Supplement – Part 2
Your Blood Supplement
Recently I was asked to write about having von Willebrand's disorder for a supplement called Your Blood which is soon to come out with an issue of The Independent. I was asked to write a paragraph but being me that was like trying to insert an elephant into a letter box.I am going to publish … Continue reading Your Blood Supplement
I beg your pudding?
I used to be a good listenerOr at least I thought I wasYou, dear friends, Might tell me differentAnd I wouldn't mind :)I tried to be a good listenerAttentive, empathetic, sympatheticRemembering detailsRecalling them for future conversationsEnjoying sharing such a simple pleasureNow ...Now it's now so much funNot so rewarding Not so participatoryThe intention is still thereI … Continue reading I beg your pudding?
For a limited time only…
This is me practising for my audition to join the choir Voices Unlimited. I'm putting it on here for a short time so my friends can see it, as it wouldn't upload to Facebook.Too late - you missed it!Apologies if I'm boring you for posting yet another video - inspiration of the written kind is … Continue reading For a limited time only…
Get Well From ME
I discovered these videos the other day through a Facebook friend and fellow CFS sufferer. The maker and narrator of the videos, Giles Meehan, is a recovered ME patient. That makes him sound like an alcoholic - sorry Giles. The point is he has got better and he has developed a website and a number … Continue reading Get Well From ME
I Bruise Easily
My song. Sing along if you like, I will be. Always loved it:x
ME / CFS International Awareness Day 2011
Today, Thursday 12 May, is International Awareness Day for ME / CFS and Fibromyalgia. Some of those raising awareness suggested wearing purple so I did that today. Like many other not so good days I spent the day in my pyjamas and dressing gown. My purple dressing gown. I thought today well worthy of a … Continue reading ME / CFS International Awareness Day 2011
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
And the germs keep coming, coming …
On the second night of lurgy,my bad bug gave to me:12 tatty tissues11 sniffs a snivelling10 turns a tossing9 sudden sneezes 8 soothers sucked7 toilet trips6 chapters read5 vay pour ruuuubs4 drinks of water3 sleeping tablets2 lem sips And a damn near non-existent night's sleeeeeep!- Posted using BlogPress from my iPhone
Funny Bleeder 