I used to be a good listenerOr at least I thought I wasYou, dear friends, Might tell me differentAnd I wouldn't mind :)I tried to be a good listenerAttentive, empathetic, sympatheticRemembering detailsRecalling them for future conversationsEnjoying sharing such a simple pleasureNow ...Now it's now so much funNot so rewarding Not so participatoryThe intention is still thereI … Continue reading I beg your pudding?
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For a limited time only…
This is me practising for my audition to join the choir Voices Unlimited. I'm putting it on here for a short time so my friends can see it, as it wouldn't upload to Facebook.Too late - you missed it!Apologies if I'm boring you for posting yet another video - inspiration of the written kind is … Continue reading For a limited time only…
Get Well From ME
I discovered these videos the other day through a Facebook friend and fellow CFS sufferer. The maker and narrator of the videos, Giles Meehan, is a recovered ME patient. That makes him sound like an alcoholic - sorry Giles. The point is he has got better and he has developed a website and a number … Continue reading Get Well From ME
I Bruise Easily
My song. Sing along if you like, I will be. Always loved it:x
ME / CFS International Awareness Day 2011
Today, Thursday 12 May, is International Awareness Day for ME / CFS and Fibromyalgia. Some of those raising awareness suggested wearing purple so I did that today. Like many other not so good days I spent the day in my pyjamas and dressing gown. My purple dressing gown. I thought today well worthy of a … Continue reading ME / CFS International Awareness Day 2011
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
And the germs keep coming, coming …
On the second night of lurgy,my bad bug gave to me:12 tatty tissues11 sniffs a snivelling10 turns a tossing9 sudden sneezes 8 soothers sucked7 toilet trips6 chapters read5 vay pour ruuuubs4 drinks of water3 sleeping tablets2 lem sips And a damn near non-existent night's sleeeeeep!- Posted using BlogPress from my iPhone
There’s something about you, speeding through my veins until we hit the ground
Been a bit bleurgh lately and my blog's been somewhat contaminated with blood issues. Let's lighten the duck up with a cracking song:Happy Valentines Day to anyone who bobs by xxx
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
Government Announce Results of their Contaminated Blood Review
I'm really upset. The government are doing the least amount they can for those who meet the stage 2 Skipton Fund criteria and widows who can prove that their partners met that criteria. This is a small minority of our community and an inadequate, difficult to fulfil criteria. It is so minimal I'm bloody crying. What … Continue reading Government Announce Results of their Contaminated Blood Review