This morning I am not well. It's weird actually saying that, because it's my mental health that is shot, however, for some reason I feel like that is my fault, that I am somehow in control of my mental state and that I should just "pull myself together", woman up and be "ok". Well this … Continue reading Help Wanted – warning bad language
Bleeding
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Meeting with Anne Milton, Health Minister, October 24th
I recently attended a meeting with Anne Milton, Health Minister, on Monday October 24th at the Department of Health in London. My MP, Mark Garnier, managed to get me on the list of attendees. I was keen to attend to tell her personally how I felt about her announcement in January of this year which … Continue reading Meeting with Anne Milton, Health Minister, October 24th
Your Blood Supplement – Part 3
This is the third and final part of the piece I submitted to the Independent newspaper for their Your Blood Supplement. Only a tiny bit was included in the final piece and you can see it here:Your Blood SupplementYour Blood - Part 3I found out just before I went to university that I had contracted … Continue reading Your Blood Supplement – Part 3
Your Blood Supplement – Part 2
This is the second part of the information I sent to the Independent for their Your Blood supplement. It is being published tomorrow Friday 2 September - I'll put the link on here in due course. Your Blood - Part 2The next major challenge was, unsurprisingly, when my periods started. This was a moment my … Continue reading Your Blood Supplement – Part 2
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Bleed Hazards
As a type 3 von Willebrand, life is like a box of chocolates. One which has been sabotaged by an ex lover and is filled with poisoned soft centres and pebble filled truffles which will break your teeth.Being a severe bleeder, activities which are undertaken without a second thought by a non bleeder, to me … Continue reading Bleed Hazards
I Am In Pain – so there!
I have had some good news today.Well, not exactly good news but I'm pleased nonetheless.I was referred for an M.R.I. on my ankle last time I saw my haemophilia specialist. This may sound extreme but other than a cursory play with my foot whenever I saw him, and sometimes not even that, I had begun … Continue reading I Am In Pain – so there!
Spot the Clot (or lack of it)
Stepped out of the shower this morning and was drying myself when I had a familiar and slightly disturbing experience...Blood spatter.Not on the walls or the floor or, heaven forbid, the ceiling. On my towel. Which was fresh out of the linen cupboard.Ok - so I don't have a linen cupboard, it was just off … Continue reading Spot the Clot (or lack of it)
Night Mare
This was the evening after the morning before.Another weeny gummy bleed. Where this one came from I'm not sure - think it started around mid afternoon - aaaah mebbe it was that piece of Soreen I had with my cuppa?? It is very sticky and probly sucked a bit of my gum off. Nice. Anyway, … Continue reading Night Mare
Funny Bleeder 