So here we are. Writing for no real reason. I'm doing this during a Tap & Write session with Kate Marillat as part of her Taping Collective group on FB, which uses EFT to release resistance and blockages when you are trying to write. It's a great group video session that uses tapping to release … Continue reading Happy to be Ros
Hepatitis C
Factor 9 – pledge now to take this play to the Edinburgh Fringe
I am writing this post to ask for your help with the attempt to get an incredible piece of work shown at this year's Edinburgh Fringe Festival. A playwright called Hamish MacDonald has written a play called Factor 9 based on the contaminated blood tragedy whereby thousands of haemophiliacs and those with other bleeding disorders … Continue reading Factor 9 – pledge now to take this play to the Edinburgh Fringe
In the words of Gloria Gaynor …
I am Rosamund MaryI was born on the Isle of ManI was adopted when I was 12 weeks oldI have a rare form of Von Willebrand's diseaseI have less than 3% Von Willebrand's factorI have less than 1% factor 8I have injections to replace the clotting factor and stop bleedingI learned to do them myself … Continue reading In the words of Gloria Gaynor …
Meeting with Anne Milton, Health Minister, October 24th
I recently attended a meeting with Anne Milton, Health Minister, on Monday October 24th at the Department of Health in London. My MP, Mark Garnier, managed to get me on the list of attendees. I was keen to attend to tell her personally how I felt about her announcement in January of this year which … Continue reading Meeting with Anne Milton, Health Minister, October 24th
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
Government Announce Results of their Contaminated Blood Review
I'm really upset. The government are doing the least amount they can for those who meet the stage 2 Skipton Fund criteria and widows who can prove that their partners met that criteria. This is a small minority of our community and an inadequate, difficult to fulfil criteria. It is so minimal I'm bloody crying. What … Continue reading Government Announce Results of their Contaminated Blood Review
Contaminated Blood House of Commons Debate – 14.10.10
Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10
Ichabod is itchy …
... and so, the blinking heck, am I!! This time of night is a particularly pleasant time for me. Every night is the same; though it is worse if I am more tired. Basically I formicate. Every night. And it isn't fun. It's ... hang on a mo ... that is not what I said ... … Continue reading Ichabod is itchy …
For ME
Happy International ME/CFS and Fibromyalgia Awareness Day everyone!!Today, 12 May, is a day for raising awareness of ME / CFS and Fibromyalgia internationally. (Ok - so it's clearly not the 12th any more but that is when I started writing this piece.)In honour of this I would like to make the subject of my post … Continue reading For ME
