So here we are. Writing for no real reason. I'm doing this during a Tap & Write session with Kate Marillat as part of her Taping Collective group on FB, which uses EFT to release resistance and blockages when you are trying to write. It's a great group video session that uses tapping to release … Continue reading Happy to be Ros
Haemophilia
Factor 9 – pledge now to take this play to the Edinburgh Fringe
I am writing this post to ask for your help with the attempt to get an incredible piece of work shown at this year's Edinburgh Fringe Festival. A playwright called Hamish MacDonald has written a play called Factor 9 based on the contaminated blood tragedy whereby thousands of haemophiliacs and those with other bleeding disorders … Continue reading Factor 9 – pledge now to take this play to the Edinburgh Fringe
World Haemophilia Day 2014
Hello there and happy World Haemophilia Day!Whether you're a bleeder or a clotter you may be interested to see this video which I made last week of me having one of my regular clotting factor injections. As a severe bleeder with type 3 von Willebrand I learned to self-infuse factor 8 aged 14 (26 years … Continue reading World Haemophilia Day 2014
Meeting with Anne Milton, Health Minister, October 24th
I recently attended a meeting with Anne Milton, Health Minister, on Monday October 24th at the Department of Health in London. My MP, Mark Garnier, managed to get me on the list of attendees. I was keen to attend to tell her personally how I felt about her announcement in January of this year which … Continue reading Meeting with Anne Milton, Health Minister, October 24th
Betrayal and Lies — Please Share
This video has been put together by a fellow contaminated blood campaigner and friend of mine, Richard. It contains contributions from a number of friends, many of whom are tragically no longer with us.It is disturbing but essential viewing if you are interested in the unnecessary infection of thousands of bleeders like me, through our … Continue reading Betrayal and Lies — Please Share
Letter to the Health Minister regarding the Contaminated Blood Announcement
I am writing following your announcement to the House of Commons on Monday 10 January regarding HIV and Hepatitis C contaminated blood and blood products.I appreciated your apology on behalf of this administration and those who have failed to address this - the greatest tragedy of modern health care. I trusted that when you said … Continue reading Letter to the Health Minister regarding the Contaminated Blood Announcement
Contaminated Blood House of Commons Debate – 14.10.10
Around 100 of us crowded into the public gallery in the House of Commons last Thursday to hear a historic back bench debate on contaminated blood products. Haemophiliacs and von Willebrands, infected and affected, wives and husbands, families of those too sick to be there and widows and children of those who have died.We had … Continue reading Contaminated Blood House of Commons Debate – 14.10.10